He has been nominated for his music for a local award
in the best solo artist category (category E) number 5 the boy i use to be, the link is below.
and would love if you could vote for him, please. he's just 16,and suffers with ME/CFS,this is a huge thing to be nominated, writes his own songs and music.
You can listen to his music here: http://www.myspace.com/theghostiusedtobe
and you can vote online at: http://www.portsmouth.co.uk/guidevotes quoting nuber '5. The Boy I Used To Be' in category E. best solo artist
Thankyou! crafty hugs julie-anne xx
Sunday, 4 October 2009
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2 comments:
I've just placed my vote & now I'm going to put a post on my blogs & facebook to ask my friends & family to vote too. Good luck to your son. I wish him much success. I'm glad you are feeling better too.
Helen x
Hello Julie-Anne I saw your comment on Helen's blog about your son's ME.
I was surprised to hear that he was being treated on Doxycyline, do you think he has benefited since being on Doxy?
Rather an odd question but the reason I ask is that I was diagnosed with ME/CFS and like many other people I responded to antibiotics which led my GP to realise that I actually had Lyme Disease. On long term high dose antibiotics I am now 100% recovered.
I never had a positive test but then many people don't especially after being ill some years. Lyme tests are antibody tests and are only about 50% reliable.
The smallest tick is only the size of a poppy seed and so we are not always aware of being bitten.
I live in Guildford and have met about a dozen other people with Lyme here several of us had been wrongly diagnosed with ME/CFS.
The New Forest has been a known endemic area for Lyme since the 1970's when Lyme was first named in USA. Although Borrelia(Lyme) has been known to exsist in Europe since the 1950's and in fact dates back to the end of the Ice Age.
If you have a look at my blog on the right hand side there are many interesting links into the controversy that makes this illness so difficult for doctors to diagnose and treat.
My friends daughter was bedridden with ME/CFS for 10 years, at aged 17 she went to Breakspear private hospital and they found she had Lyme and various co infections including virus and with antibiotics and anti virals she has been well for the last few years. Living in France skiing and partying and working as well as doing Open University.
It sounds as if the treatment is working for your son and that the hospital may be on the ball but I would at the very least suggest you check out www.lymediseaseaction.org.uk
I will be interested to hear how the XMRV retro virus pans out and see if this could infact be yet another co infection passed on with Lyme to some of the sickest patients.
Good luck and I enjoyed his song but was too late to vote.
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